"Being an #ePatient: can feel like crashing a party you're not invited to"

#MedX @StephenFriend announces #SageBionetworks has grant to build three "bridge" projects to bring citizen researchers into loop.
— Janet Rae-Dupree (@jraedupree) September 27, 2013

#Medx Q. Are implantable devices designed with no thought of life expectancy & ease of replacement.& #implant failures?
— Anthony Harvey (@TinyTonyH) September 27, 2013

	Tim King has made a comment on A heart transplant is not a cure. There are better options. To reply to this comment click here. To see all comments on this video click here. The trouble with mechanical implantation is that hospitals and clinics do not have sufficient staffing or external support systems in place to deal with patients who are already implanted. As the son of someone with an LVAD implanted five months ago I can tell you that there are any number of real issues for these patients once they are discharged that nobody is equipped to deal with. I would NOT recommend implanting a VAD in a loved one who is not transplant eligible under any circumstances.

Being an #ePatient: can feel like crashing a party you're not invited to. From an audience member. #medx
— Liza Bernstein (@itsthebunk) September 27, 2013

@Pcori #medx the question I wanted to ask was how do everyday people (ie. patients) realistically find and join research collaborators?
— Rupa Patel (@rupatel) September 27, 2013

Example that is great but another indicator of a problem-"Involving patients in research".Patients are who the research is for right? #MedX
— Alan Brewington (@abrewi3010) September 27, 2013

Involving patients in research, the #PCORI story http://t.co/CSBpxC385j #MedX #CER #PCOR #EBM #Medicine #Health
— Elin Silveous (@ElinSilveous) September 28, 2013

Thx #MedX as U bring 2gethR myriads of entrenched patient associations+reboot medicine! @StanfordMedX @EricTopol #CDoM #P4Medicine #genomics

— CATHERINE COSTE (@cathcoste) September 28, 2013