Amputated patient is trying to engage emergency care in digital age (or will die trying)
AUDIO VERSION (download audio file). This is a success story: listen to how a leg amputated patient is engaging emergency care in digital age!
Audio files on this blog are Windows files ; if you have a Mac, you might want to use VLC (http://www.videolan.org) to read them.
Son of leg amputee patient: healthcare system works in silos where it should work across the silo: (video in French)
Nicolas from
Jean Michel Billaut on
Vimeo.
About four years ago, my friend, a French digital economist (actually one
of the top social media influencers in his country), felt a violent and sudden
pain in his knee and the back of his leg, as he was playing with his three-year
old grandson. Turns out it was his popliteal artery that was ailing. My friend
had been experiencing what you might call the equivalent of a cerebrovascular
accident, but instead of happening in his brain, the bad news was happening at
the back of his left leg.
His son, a physician, calls 911 – or rather, the French equivalent of 911,
as this is all happening in France. The son happens to work at the exact same
place where the father lives. How convenient and ideal for an emergent patient!
Optimal reaction time, as you might say. Excellent! Except that no ambulance
was sent, in spite of the accurate description of popliteal aneurysm symptoms
made by his son on the phone. Yes, you hear me, on the phone. I know, this is
digital age, but guess what? (Non-) emergent patients are being triaged… on the
phone. The whole thing seems to run by fortuneteller rather than by scientific
standards, if you want my opinion…Anyway, the person operating the triage
system in this particular circumstance did not deem it necessary to require an
ambulance, so much for optimal reaction time and care. When finally the
ambulance came, they were not sure exactly where to go so they just drove my
friend around, see if they could find some available OR, and some available
surgeon, vascular surgical specialty.
"Sorry, that OR is not equipped for vascular surgery," "- oh
ok, I see, well, we’ll try some other place then," and so on and so
forth.
Four hours later – and this is happening near Paris, mind you, not in the
middle of nowhere! – my friend finally sees a surgeon… said surgeon wears a
frown: “Not sure you can keep your leg… It looks bad… You should have come
earlier…”
I kid you not.
Guess what happened next? My friend had to undergo several painful surgical
procedures AND vascular surgeon could not avoid leg amputation. They could not
save my friend's limb. Pay AND suffer.
The saddest thing of all is that this is only the beginning of the nightmare…
I’ve been listening to him telling his story on various occasions in the course
of the past few years and months and each time he sounded like whenever he was
trying to explain his situation to medical and admin staff, he got "put in
his place". A few days ago, he told his story on his blog, using real
names and wrote about conversations that actually took place – but he ended up
receiving threat phone calls: "We’ll harm your family if you don’t take
this off your blog." That kind of thing.
He pressed charges (delayed treatment) and lost the trial. Dismissed case.
The point he wants to make? Our healthcare system
works in silos where it should work across the silo. How about using
telemedicine for patient triage?
"72% of Consumers Are Willing
to See a Doctor Via Telehealth Video Conferencing in the US."(just about the same in France, I would guess)...
Now, how about some smartphone app that would signal which OR is available, in
which surgical specialty, so that ambulances don’t have to drive a patient
around for hours, trying to guess where they should drop him… Is emergency care
bound to be like a shot in the dark – in digital age, when we have a 'killer
app' for just about anything? Anything but health? How ironic!
Yet in the course of four
years, we saw a lot of engineers, they offered their eager and friendly and
expert help and advice to make appropriate apps and promote telemedicine. Now
I'm thinking back at all the efforts we have deployed, and looking back at all
the meetings we’ve held… but to little avail. We could have saved time. We
could have saved energy. Why? Because, you know what?
It is not in the best interest of those occupying a privileged or strategic
position to listen to my friend and his embarrassing futuristic
technological mood.
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Click on the pic to view it full size |
Whenever I listen to what my internet and
futuristic minded friend has to say about digital economy in general and its
disruptive aspects in particular, though, the "futuristic-technological-mood"
thing just makes perfect sense!
FUTURE 2.0? Generations, myths,
beliefs, religions, philosophies, technology and its use, added value and its
distribution... by Homo Sapiens.
This presentation has been held at the
Paris offices of L'Oreal, in April 2012. It explains major shifts of
paradigm happening right here and right now in medicine, business, economy,
communication. Genomics and digital care combine for healthcare ... The global
digital economy is getting in gear, reorganizing our entire economic system ...
Open source technologies, wireless medicine, robotics ... Let's take a look at
the facts ... How to survive and thrive? Be on the lookout for
information, as "the general who wins a battle is the best informed"
(Sun Tzu, "The Art of War").
What happened
to my friend could happen to me, it could happen to you, in fact it could
happen to just anybody. Forget about France. Forget about the U.S. Because it's
just the same story. Medicine is sick. How can we heal it? We
don’t need lonesome cowboys, we need pit crews. Now saying this is as
disruptive as it gets. Will surgeons let the patients hold the scalpel? I, for
one, know the answer.