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| #SolveMIT |
Un projet de loi pour que les données santé appartiennent aux patients
Un projet de loi pr que les données santé, vitales & fitness soient la propriété des patients @gouvernementFR #PWSYN pic.twitter.com/kueG7AYeOk
— CATHERINE COSTE (@cathcoste) September 27, 2015
Ai proposé projet loi pr que les données de santé appartiennent aux patients @axellelemaire @Billaut @portablegenomic pic.twitter.com/FXbZXSAbHj
— CATHERINE COSTE (@cathcoste) September 27, 2015
Chap 2 Sec.1 Protection des données à caractère perso: ma proposition 2 loi @Billaut @healthbankcoop @portablegenomic pic.twitter.com/Eat3ru1OYf
— CATHERINE COSTE (@cathcoste) September 27, 2015
"You Change The World When You Change Your Mind"
Dying Steve Jobs: "IT & biology have merged. Time to learn about it" #MOOC #MedX TY @ReginaHolliday for great jacket! pic.twitter.com/oHW306d0Ap
— CATHERINE COSTE (@cathcoste) September 27, 2015
Identifying a clinically actionable target from the RNA-seq data
Bringing #precisionmedicine into the forefront of #healthcare: http://t.co/r4XAjjFXNf #PWSYN #MedX @FLGenomics pic.twitter.com/6UcYMF6VCp
— CATHERINE COSTE (@cathcoste) September 27, 2015
Genomic Entertainment
For me there is no greater happiness than writing a book I love. Thank you @cp92isa for helping me do just that #scifi #writing
— CATHERINE COSTE (@cathcoste) September 26, 2015
"Des reins de laboratoire opérationnels une fois greffés"
Des reins de laboratoire opérationnels une fois greffés http://t.co/jbrdo73THj par @CLembezat pic.twitter.com/Q7PKLoXOn3
— Courrier inter (@courrierinter) September 22, 2015
Made-In-France Genomic Prohibition
TY @jhewitt123 4 article in @ExtremeTech http://t.co/KEYaR6Xey7 @nanopore http://t.co/f9MfuGcVqu @FLGenomics #PWSYN pic.twitter.com/jn1liZRuz2
— CATHERINE COSTE (@cathcoste) September 21, 2015
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| French bioethics laws say it is forbidden for me as a French citizen to have my genome sequenced on my own initiative. |
Waldo Solve MIT
— CATHERINE COSTE (@cathcoste) September 22, 2015
Finding Waldo is like finding a gene. We need YOUR help! @SOLVE_MIT Oct. 5-8 http://t.co/IRrwul0Xhs #PWSYN #728x pic.twitter.com/g86DCpeWN9
— CATHERINE COSTE (@cathcoste) September 22, 2015
And if you can't make it to MIT for Solve, we'll livestream sessions here: http://t.co/j5wLD7lxXN #FF @SOLVE_MIT pic.twitter.com/SCB30c5VkZ
— CATHERINE COSTE (@cathcoste) 19 Septembre 2015
DNA Transcription & Transposition
#728x Molecular Biology part 2: Transcription & Transposition starts Oct 27!
Join us: http://t.co/bEtdZP7akE pic.twitter.com/SRU1bn2ubn
— MITx biology (@MITxBio) August 25, 2015
This Low-Cost 3-D Printer Can Produce Human Organs And Bones
This Low-Cost 3-D Printer Can Produce Human Organs And Bones http://t.co/IGxjoJUHQS biofabrication goes into garages pic.twitter.com/BDALQmiBLb
— Ross Dawson (@rossdawson) August 20, 2015
Post-mortem organ donation won't help you before you die, but the science of cryonics might
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| Web site for this picture |
Dying in piece(s) or dying in peace?
This is the story of Kim. She suffered from glioblastoma, an incurable brain tumor. Glioblastoma is just another word for "Ikigami". She died at the age of 23, but before that, she had been looking for something that would help her die in peace at such a young age. She decided that this thing would be: freezing her brain.
This cryonic project was probably what helped Kim best before her death from brain cancer.
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| Link to this picture |
A Dying Young Woman’s Hope in Cryonics and a Future http://t.co/1P1lYaU7eb a tour de force by @amy_harmon #brain
— Eric Topol (@EricTopol) September 12, 2015
Fascinating article on 'the false science of cryonics' in MIT Tech Review by @MHendr1cks @McGillU @TechReview http://t.co/bpPKx6H9xQ
— Sarah Moser (@SarahKMoser) September 15, 2015
.@MHendr1cks says non-scientists can’t grasp difference between ‘possible' and ‘real' so no mind uploading talk plz! http://t.co/B5yIddymZz
— Amy Harmon (@amy_harmon) September 16, 2015
"The Cryopreservation of Kim Suozzi" full report from Alcor. http://t.co/5UlEQS1EdN
— Antonio Regalado (@antonioregalado) September 15, 2015
cryopreservation of Kim Souzzi's brain didn't even work "..cryoprotective perfusion was not generally successful..." http://t.co/5UlEQRK3mf
— Antonio Regalado (@antonioregalado) September 15, 2015
@cathcoste @JohnNosta could be true
— Antonio Regalado (@antonioregalado) September 16, 2015
— Adam J Calhoun (@neuroecology) September 13, 2015
@schoppik @amy_harmon The belief that the mind is separate, transferable from body isn't any more scientifically valid than souls or spirits
— Grant (@usethespacebar) September 12, 2015
Actually, seeking technological #immortality is becoming mainstream in society only now.
— GF2045 (@2045Initiative) September 16, 2015
Everyone's talking about uploading brains at the moment when I can barely upload a 20Mb Powerpoint.
— Nick Loman (@pathogenomenick) September 15, 2015
BBC News - Google’s Demis Hassabis – misuse of artificial intelligence 'could do harm' http://t.co/zDcPpiQ2oQ #digitalhealth #HIT
— JOHN NOSTA (@JohnNosta) September 16, 2015
I cannot ask for my own genome to be sequenced in France
I cannot ask for my own genome to be sequenced in France #PWSYN Pictures: http://t.co/qLNOmeCM3C #StarWars @Billaut pic.twitter.com/Iec6BMk7fP
— CATHERINE COSTE (@cathcoste) September 15, 2015
"I’m paying $10,000 a year for something I should be getting for free"
Surprised by the limited response to this egregious censorship http://t.co/hWjh4R6wC3 by @dariustahir @politico pic.twitter.com/NLlln6c34W
— Eric Topol (@EricTopol) September 15, 2015
"Photograph 51"
Review of @Photograph51WE, the #DNA story: Nicole Kidman as Rosalind Franklin http://t.co/EP9MMChSWj pic.twitter.com/4S5fReuHXY
— Eric Topol (@EricTopol) September 15, 2015
Editing the Human Genome
Link to article
You-On-A-Chip and You Doing Your Labs spotlighted in @FastCompany's "Innovation by Design" Oct 15 issue #indivmed pic.twitter.com/5kTOijiCBF
— Eric Topol (@EricTopol) September 15, 2015
Data Is The New Spice
Paul is the Jesus of the Fremen #Dune. Freeing Our Medical Data -> God = @EricTopol; Jesus = @ReginaHolliday #PWSYN pic.twitter.com/MSF7pKzXv0
— CATHERINE COSTE (@cathcoste) September 9, 2015
Owning your medical data should be a civil right
— Eric Topol (@EricTopol) September 9, 2015
May the Force of the Suits Be With You
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| Tim Burton's Strange and Unusual Village on FB. |
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| Get this book on Amazon (print or kindle version) |
Empowered patients instead of outdated and entrenched science.
Who would have guessed that the worldwide hub of democratized health care would be a grassroots woman from America, a painter? This book is Duck Medical Dynasty. If I were to write each and every story I heard from somebody (surgeon, doctor, nurse, patient, relative) complaining about the health care system, I would probably be the busiest woman on earth (spoiler alert: unpaid work), and the least popular. Plus I’d probably end up killing myself. But Regina (Latin: "Queen") wrote a special algorithm that kind of changed the gravity laws of paternalistic, patent (not « patient ») centered life science. « Words placed where they do not belong can be hard to ignore » (p. 20). Like painting episodes highlighting people’s lives or experience as caregivers or patients at the back of their jacket, or on Diego Riviera-style murals? A jacket they would wear during medical conferences or congresses; murals getting press coverage in national newspapers ("73 cents" ). Lobbying is usually a job involving politics and money. Regina’s activism consists in painting - politics and money are side effects, the former more abundant than you wish for, the latter much less generous (« nice girls don’t get rich »). All she wants is to be put out of business. She is the transition hero we need right now. We all heard that one day (in a few decades?), we will be able to 3D print organs, or medical treatment against diabetes or even cancer, and patients will own their medical and genomic data that they will be able to share with whoever they want and even monetize. Owning the data coming from your own body. It kind of makes sense, doesn’t it?« Feel better, monetize your data! » Meanwhile, we are stuck in a world of imprecise chemotherapies killing healthy cells in patients, of patients having to pay till it hurts, of organ « donation » shortage (not enough people dying?!?), of patients begging to access their own medical data until it is too late for them and their ghost has to carry on with the begging job. Obviously, the brilliant future of medicine, the so called « Singularity or Exponential Medicine », has a transition problem. How do we get there? Anyone willing to offer a hype filter? I used to write that Eric Topol MD, author of medical bestsellers « The Creative Destruction of Medicine », « The Patient Will See You Now », and Regina Holliday, are the alpha and omega of digital medicine. Not like Doctor Who’s Omega (Season 4), though, wanting to control and own the Singularity. Taking advantage of her algorithm, Regina, the founder of the Walking Gallery of Health Care, has painted over 380 jackets, with the help of a few artists she has recruited. Somewhere I have read that being able to tell your story or having someone tell it is as important to you as food or love or shelter. The algorithm is powerful.
Doctors gave Regina and her two young sons a ghost (a deceased father); she is giving them tough love in return, denouncing and fighting entrenched and paternalistic medicine and anything putting patients in « data prison ». Being robbed of your own data means you don’t have the information. As I heard surgeons and doctors say over and over again: « Information is power ». Without your health data, you have neither knowledge nor power. Are you at risk for a disease? Are you sure you are aware of the best treatment options for your condition? Was your doctor able to achieve the right diagnosis? Or does it feel more like you just saw the Marabout of some African village in the middle of nowhere, and were « given » amulets for good luck? Outrageously bad medicine for the over priced amount that was charged! « 73 cents. (…) This is how much you can pay per page for your medical record in hospitals in the state of Maryland. In Texas it is often a dollar. In Germany it was 88 cents. In the US, you also can easily wait to 21 days to get the entire record, but if the facility says they need an extension a family can wait 60 days. » (p. 235). According to Eric Topol MD, the cost per minute in the Emergency Room is 82 cents, in the surgical Intensive Care Unit: $ 1.43 and in the operating room for an orthopedic surgery case: $12.» (source: twitter, September 7, 2015). What is the cost of a delayed diagnostic - renal cell carcinoma in the case of Regina’s husband? Death.
This book, telling the story behind the (380 and counting) painted stories, is like two musicals undergoing a « freaky fusion » process: « Les Misérables » and « The Book of Mormon ». Making the leading edge and the bleeding edge of medicine work together to put the patient at the center of the health care system is like some kind of Monster High « Freaky Fusion », as it has never been done before. How do we get there is the question everybody is asking. There is no doubt we will need transition heroes. Regina is producing those, one jacket at a time. This « in your face » kind of activism will make history. One question remains, and the book does not give the answer: can the powerful algorithm change this: « Nice girls don’t get rich »?
When an artist’s work has been endorsed by the art world, this can increase the value of the artist’s portfolio and catapult him into another tier of prestige. What price would « The Walking Gallery of Health Care » sell for? Will the murals and paintings end up at the MoMA NY one day? Regina isn’t a one-trick donkey. She has other algorithms in store for us…
« On May 30 2009 at 4:30 in the morning, I would place the first mural called ‘The Medical Facts Mural’ in Pumpernickel’s Deli. Within days, the work would be shared on the HealthCare Blog. An advocacy movement was born. » This mural was a « re-visioning of the face sheet mimicking in style and clarity the nutrition facts label: all-important, vital statistics were present with norms for comparison. » (p. 204).
Chapters from this book everybody should get to read: « Little Miss A-Type Personality », « Data Prison », « Art as Medical Advocacy ».
May the Force of the Suits Be With You.
Who would have guessed that the worldwide hub of democratized health care would be a grassroots woman from America, a painter? This book is Duck Medical Dynasty. If I were to write each and every story I heard from somebody (surgeon, doctor, nurse, patient, relative) complaining about the health care system, I would probably be the busiest woman on earth (spoiler alert: unpaid work), and the least popular. Plus I’d probably end up killing myself. But Regina (Latin: "Queen") wrote a special algorithm that kind of changed the gravity laws of paternalistic, patent (not « patient ») centered life science. « Words placed where they do not belong can be hard to ignore » (p. 20). Like painting episodes highlighting people’s lives or experience as caregivers or patients at the back of their jacket, or on Diego Riviera-style murals? A jacket they would wear during medical conferences or congresses; murals getting press coverage in national newspapers ("73 cents" ). Lobbying is usually a job involving politics and money. Regina’s activism consists in painting - politics and money are side effects, the former more abundant than you wish for, the latter much less generous (« nice girls don’t get rich »). All she wants is to be put out of business. She is the transition hero we need right now. We all heard that one day (in a few decades?), we will be able to 3D print organs, or medical treatment against diabetes or even cancer, and patients will own their medical and genomic data that they will be able to share with whoever they want and even monetize. Owning the data coming from your own body. It kind of makes sense, doesn’t it?« Feel better, monetize your data! » Meanwhile, we are stuck in a world of imprecise chemotherapies killing healthy cells in patients, of patients having to pay till it hurts, of organ « donation » shortage (not enough people dying?!?), of patients begging to access their own medical data until it is too late for them and their ghost has to carry on with the begging job. Obviously, the brilliant future of medicine, the so called « Singularity or Exponential Medicine », has a transition problem. How do we get there? Anyone willing to offer a hype filter? I used to write that Eric Topol MD, author of medical bestsellers « The Creative Destruction of Medicine », « The Patient Will See You Now », and Regina Holliday, are the alpha and omega of digital medicine. Not like Doctor Who’s Omega (Season 4), though, wanting to control and own the Singularity. Taking advantage of her algorithm, Regina, the founder of the Walking Gallery of Health Care, has painted over 380 jackets, with the help of a few artists she has recruited. Somewhere I have read that being able to tell your story or having someone tell it is as important to you as food or love or shelter. The algorithm is powerful.
Doctors gave Regina and her two young sons a ghost (a deceased father); she is giving them tough love in return, denouncing and fighting entrenched and paternalistic medicine and anything putting patients in « data prison ». Being robbed of your own data means you don’t have the information. As I heard surgeons and doctors say over and over again: « Information is power ». Without your health data, you have neither knowledge nor power. Are you at risk for a disease? Are you sure you are aware of the best treatment options for your condition? Was your doctor able to achieve the right diagnosis? Or does it feel more like you just saw the Marabout of some African village in the middle of nowhere, and were « given » amulets for good luck? Outrageously bad medicine for the over priced amount that was charged! « 73 cents. (…) This is how much you can pay per page for your medical record in hospitals in the state of Maryland. In Texas it is often a dollar. In Germany it was 88 cents. In the US, you also can easily wait to 21 days to get the entire record, but if the facility says they need an extension a family can wait 60 days. » (p. 235). According to Eric Topol MD, the cost per minute in the Emergency Room is 82 cents, in the surgical Intensive Care Unit: $ 1.43 and in the operating room for an orthopedic surgery case: $12.» (source: twitter, September 7, 2015). What is the cost of a delayed diagnostic - renal cell carcinoma in the case of Regina’s husband? Death.
This book, telling the story behind the (380 and counting) painted stories, is like two musicals undergoing a « freaky fusion » process: « Les Misérables » and « The Book of Mormon ». Making the leading edge and the bleeding edge of medicine work together to put the patient at the center of the health care system is like some kind of Monster High « Freaky Fusion », as it has never been done before. How do we get there is the question everybody is asking. There is no doubt we will need transition heroes. Regina is producing those, one jacket at a time. This « in your face » kind of activism will make history. One question remains, and the book does not give the answer: can the powerful algorithm change this: « Nice girls don’t get rich »?
When an artist’s work has been endorsed by the art world, this can increase the value of the artist’s portfolio and catapult him into another tier of prestige. What price would « The Walking Gallery of Health Care » sell for? Will the murals and paintings end up at the MoMA NY one day? Regina isn’t a one-trick donkey. She has other algorithms in store for us…
« On May 30 2009 at 4:30 in the morning, I would place the first mural called ‘The Medical Facts Mural’ in Pumpernickel’s Deli. Within days, the work would be shared on the HealthCare Blog. An advocacy movement was born. » This mural was a « re-visioning of the face sheet mimicking in style and clarity the nutrition facts label: all-important, vital statistics were present with norms for comparison. » (p. 204).
Chapters from this book everybody should get to read: « Little Miss A-Type Personality », « Data Prison », « Art as Medical Advocacy ».
May the Force of the Suits Be With You.
My review on @amazon of @ReginaHolliday's book The Writing on the Wall http://t.co/0a915TTtKG #DoctorWho #PWSYN pic.twitter.com/lbqhq1pi50
— CATHERINE COSTE (@cathcoste) September 8, 2015
The Messy Doctor Will See you Now
Medicine is inherently messy. And then there's some who think Biology is bad. #synbio
— Robert West PhD (@westr) September 6, 2015
Singing Along
I am in Disneyland Paris, singing along "Frozen" theme song "Let it go". My brother, Serge, is Elsa and I am his younger sister.
Serge, this is for you. You are my Elsa and I will always be your younger sister Anna ;)
Can you recognize my high-pitched voice in this audio file? (yes, I'm singing along!!)
Audio files on this blog are Windows files ; if you have a Mac, you might want to use VLC (http://www.videolan.org) to read them.
Concernant les fichiers son ou audio (audio files) sur ce blog : ce sont des fichiers Windows ; pour les lire sur Mac, il faut les ouvrir avec VLC (http://www.videolan.org).
Serge, this is for you. You are my Elsa and I will always be your younger sister Anna ;)
Can you recognize my high-pitched voice in this audio file? (yes, I'm singing along!!)
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| AUDIO FILE |
Concernant les fichiers son ou audio (audio files) sur ce blog : ce sont des fichiers Windows ; pour les lire sur Mac, il faut les ouvrir avec VLC (http://www.videolan.org).
Cell Karate
Inspired by J. Doench Midsummer Night's Science @broadinstitute #cellhaiku #genomic #entertainment #PWSYN Cell Karate pic.twitter.com/vWz10KWxLi
— CATHERINE COSTE (@cathcoste) September 2, 2015
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