Precision Medicine will need to get out of the pharma silo that is based on symptoms


Welcome to the digital era of biology (and to this modest blog I started in early 2005).

To cure many diseases, like cancer or cystic fibrosis, we will need to target genes (mutations, for ex.), not organs! I am convinced that the future of replacement medicine (organ transplant) is genomics (the science of the human genome). In 10 years we will be replacing (modifying) genes; not organs!


Anticipating the $100 genome era and the P4™ medicine revolution. P4 Medicine (Predictive, Personalized, Preventive, & Participatory): Catalyzing a Revolution from Reactive to Proactive Medicine.


After low-cost airlines (Ryanair, Easyjet ...) comes "low-cost" participatory medicine. Some of my readers have recently christened this long-lasting, clumsy attempt at e-writing of mine "THE LOW-COSTE INNOVATION BLOG". I am an
early adopter of scientific MOOCs. My name's Catherine Coste. I've earned myself four MIT digital diplomas: 7.00x, 7.28x1, 7.28.x2 and 7QBWx. Instructor of 7.00x: Eric Lander PhD.

Upcoming books: Airpocalypse, a medical thriller (action taking place in Beijing) 2017; Jesus CRISPR Superstar, a sci-fi -- French title: La Passion du CRISPR (2018).

I love Genomics. Would you rather donate your data, or... your vital organs?

Audio files on this blog are Windows files ; if you have a Mac, you might want to use VLC (http://www.videolan.org) to read them.

Concernant les fichiers son ou audio (audio files) sur ce blog : ce sont des fichiers Windows ; pour les lire sur Mac, il faut les ouvrir avec VLC (http://www.videolan.org).


Show Me My Data

"How One Tweet from Medtronic CEO Omar Ishrak Changed A Patient's World"
"Could this be one small step for man, one giant step for mankind?"
Hugo Campos, Data Liberation Advocate
"MD+DI Top 10 industry influencer, and relentless hounder of Medtronic to get access to raw data from his implantable heart device, has finally gotten what he wanted—or at least some of it. For the first time, medical device giant Medtronic has made Campos's raw ICD data available to him. Campos has been given a document in an XML format through his care provider, Stanford Hospital & Clinics. He believes a tweet from CEO Omar Ishrak may have precipitated this windfall.

Campos met with Medtronic officials in Minneapolis in early 2012 having been on a very public crusade to get access to and control of his implanted defibrillator data. But while the conversation began even before Omar Ishrak, Medtronic's CEO, joined the company, nothing much came of it - or nothing that Campos could visibly see, he said in an interview Thursday. 
Things appeared to reignite after a Twitter exchange after Ishrak posted a simple tweet..."

Read more here:

http://www.mddionline.com/article/how-one-tweet-medtronic-ceo-omar-ishrak-changed-patients-world


Impressive fight... for the right cause. Patients' health data belongs to them, not to MDs or companies... Think this goes without saying? If so, how come we need people such as "Data Liberation Advocates"?...



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