Precision Medicine will need to get out of the pharma silo that is based on symptoms


Welcome to the digital era of biology (and to this modest blog I started in early 2005).

To cure many diseases, like cancer or cystic fibrosis, we will need to target genes (mutations, for ex.), not organs! I am convinced that the future of replacement medicine (organ transplant) is genomics (the science of the human genome). In 10 years we will be replacing (modifying) genes; not organs!


Anticipating the $100 genome era and the P4™ medicine revolution. P4 Medicine (Predictive, Personalized, Preventive, & Participatory): Catalyzing a Revolution from Reactive to Proactive Medicine.


After low-cost airlines (Ryanair, Easyjet ...) comes "low-cost" participatory medicine. Some of my readers have recently christened this long-lasting, clumsy attempt at e-writing of mine "THE LOW-COSTE INNOVATION BLOG". I am an
early adopter of scientific MOOCs. My name's Catherine Coste. I've earned myself four MIT digital diplomas: 7.00x, 7.28x1, 7.28.x2 and 7QBWx. Instructor of 7.00x: Eric Lander PhD.

Upcoming books: Airpocalypse, a medical thriller (action taking place in Beijing) 2017; Jesus CRISPR Superstar, a sci-fi -- French title: La Passion du CRISPR (2018).

I love Genomics. Would you rather donate your data, or... your vital organs?

Audio files on this blog are Windows files ; if you have a Mac, you might want to use VLC (http://www.videolan.org) to read them.

Concernant les fichiers son ou audio (audio files) sur ce blog : ce sont des fichiers Windows ; pour les lire sur Mac, il faut les ouvrir avec VLC (http://www.videolan.org).


42: the Digital "New Deal", by Xavier Niel

French entrepreneur and businessman Xavier Niel (Free) has just launched a free programming school...

Will some physicians set up a free, embracing cultural and ideological differences think tank, no conflict of interests (?!), in order to accommodate what some people have to say to a broad public? Everybody ought to be able to have a say in this "digital world" (not only specialists talking to... specialists).

Having a meeting in France (I'm here for a short vacation) with some surgeons and doctors in my family (some of them are professional sound people; some of them are... mad). Some of them (belonging to both categories) even spoke very wisely and I couldn't agree more with what they said:

Saying in evidence...

It is a strange thing that in France (Europe?), everybody's doing his stuff on his own, hence constantly reinventing the wheel... We can hardly find a real team player over here... Scattered voices, claiming... broad public support? Will that ever work? You, me, the broad public, everybody can hardly find out about parents' real feelings regarding next-of-kin organ donation decision... Alain Tesnière, a father who has lost his son, did write some very interesting stuff, OK that was quite some time ago... and if you want to read more about those supposedly true feelings, you'll have to rely on religious websites (a German one, all about Protestantism: KAO) or on specialized books (Claire Boileau, an anthropologist: "Dans le dédale du don d'organes"). My blog can hardly be taken into account, as I am a story artist of some kind, a scenarist (fiction...)
Specialized stuff. When we're talking about feelings?...
No physician ever thought of creating some kind of think tank in order to coordinate or accommodate what people have to say to a broad public - people who, at some point in their lives, had to make a next-of-kin organ donation decision whatsoever ... To my knowledge, some French physicians have experienced this next-of-kin organ donation decision thing in their own flesh and family... How about them (or just one of them, remember the power of one...) setting up this kind of "think tank" I'm talking about? ... Or will the only echo we'll ever get to hear be Big Pharma's orchestrated speech in (forever and eternal) praise of organ "donation" (don't forget about the immuno drug money!)...
I've heard of some "ethical stuff" within public health care institution, called "Espace Ethique", but in my opinion they sound more like a bunch of wimpy academics (hardly a threat to mainstream politicians, and of course it's meant to be that way...)
Physicians in my family all think that the Doctors who provided me with some professional documents like the OPTIDO enquiry on organ donation did violate the Code of Medical Deontology.

And that such thing should never have been done... Oooops... Sure... It must have been an act of despair. Why not create some "think tank" on "the effects of organ donation" instead?...
Plus, it seems to me that family intimacy would be safer (in times of sorrow, this is of particular importance) in a think tank than on a blog or website where it would be... exposed (nobody likes that). Also, I'd be interested to hear what people have to say on 3D Bioprinting, on Health and Data...
French entrepreneur and businessman Xavier Niel (Free) has just launched a free programming school... He must be a Steve Jobs of some kind... 

My wild guess is that among French (European?) physicians, we don't have no Steve Jobs of any kind ...
Pic.

Gilles Babinet : "Everybody ought to be able to have a say in this digital world"...
 
==> Gilles Babinet : "Le plus grand nombre doit pouvoir prendre part aux opportunités de ce monde numérique". 

2 commentaires:

Low-Coste Innovation Blog a dit…

Une fabrique d'organes en Russie : http://french.ruvr.ru/2013_03_26/Une-fabrique-d-organes-en-Russie/

Low-Coste Innovation Blog a dit…

http://gigaom.com/2013/03/26/3-d-printers-putting-a-factory-on-every-corner/