Scientific MOOCs follower. Author of Airpocalypse, a techno-medical thriller (Out Summer 2017)


Welcome to the digital era of biology (and to this modest blog I started in early 2005).

To cure many diseases, like cancer or cystic fibrosis, we will need to target genes (mutations, for ex.), not organs! I am convinced that the future of replacement medicine (organ transplant) is genomics (the science of the human genome). In 10 years we will be replacing (modifying) genes; not organs!


Anticipating the $100 genome era and the P4™ medicine revolution. P4 Medicine (Predictive, Personalized, Preventive, & Participatory): Catalyzing a Revolution from Reactive to Proactive Medicine.


I am an early adopter of scientific MOOCs. I've earned myself four MIT digital diplomas: 7.00x, 7.28x1, 7.28.x2 and 7QBWx. Instructor of 7.00x: Eric Lander PhD.

Upcoming books: Airpocalypse, a medical thriller (action taking place in Beijing) 2017; Jesus CRISPR Superstar, a sci-fi -- French title: La Passion du CRISPR (2018).

I love Genomics. Would you rather donate your data, or... your vital organs? Imagine all the people sharing their data...

Audio files on this blog are Windows files ; if you have a Mac, you might want to use VLC (http://www.videolan.org) to read them.

Concernant les fichiers son ou audio (audio files) sur ce blog : ce sont des fichiers Windows ; pour les lire sur Mac, il faut les ouvrir avec VLC (http://www.videolan.org).


Affichage des articles dont le libellé est #PWSYN. Afficher tous les articles
Affichage des articles dont le libellé est #PWSYN. Afficher tous les articles

Welcome. I'm a Freelance Journalist and a Networking Jedi

http://www.frontlinegenomics.com/1408/front-line-genomics-magazine-issue-four

Dying Steve Jobs: "Biology and I.T. have merged." Time to learn about it.
Freelance journalist. Personal Genomics Advocate with strong social media skills.
Find me on Twitter, LinkedIn, Facebook.

Upcoming books (2016):
Doomsdare -- medical thriller (in 2 volumes).
Jesus CRISPR Superstar -- sci-fi.
Publishing house: British (Oxford, UK)

Disneyland Paris, Oct. 2014
Australia, January 2016
Anticipating the $100 genome era and the P4™ medicine revolution. P4 Medicine (Predictive, Personalized, Preventive, & Participatory): Catalyzing a Revolution from Reactive to Proactive Medicine.

2016: Fun MOOC - Institut Catholique de Paris (ICP) "Géopolitique de la Chine Contemporaine", by Prof. Emmanuel Lincot. 97% total score.

2015-2016: MIT - edX digital diploma Molecular Biology – Part 1: 7.28.1x "DNA Replication & Repair" (76% TOTAL SCORE), 7.28.2x Molecular Biology – Part 2: Transcription and Transposition (81 % TOTAL SCORE).

2013 - 2014: MIT - edX digital diplomas: 7.00x "The Secret of Life" (76% TOTAL SCORE) & 7.QBWx "Quantitative Biology Workshop" (90% TOTAL SCORE).

All things genomics.
Science = Perpetual Ascension.
Sci-fi writer: From the Broad Institute to Broadway?
Science & Society, Genomic Entertainment.

I graduated in German literature. Post-graduate teacher training at La Sorbonne University, Paris (1997/1998, 2006/2007). Master's degree in social market economy and traductology. As an undergraduate, I studied linguistics and didactics.
Work: sales & marketing assistant; middle & high school teacher, blogger.
Co-founder of the Atelier e-santé (France) with Jean-Michel Billaut.
MITx-EdX 7.00x, 7.28x, 7.28.1x certified. Genomics & Python.

Find me on Twitter @ #PWSYN - "The Patient Will See You Now", 2015 Medical Bestseller by Eric Topol MD.






My 8 followers on Weibo (Chinese equivalent of Twitter)

Really love this one!
Have signed with an Oxford UK publishing house a contract for 3 fictions, which should all be out before April 2017.

Doomsdare, a medical thriller (action taking place in Beijing)
Jesus CRISPR Superstar, a sci-fi, written with Isabelle Provost
French version of the sci-fi: La Passion Du CRISPR.

Then, from April 2017 on, will spend one year in Asia, emphasis on China. My very recent stays in Beijing? A shock, an ongoing one, one foot in fairy tale (thank you Cixin Liu) one foot in abyss (hashtag airpocalypse). Have seen a few things about the development of mHealth in China and want to explore... Thank you Jean-Michel Billaut (French blogger) for the tutorial sessions that should help me find ways to monetize those stays in Asia...

My (modest) mHealth Silk Road (LOL) project: Will explore startup incubators in Malaysia (Cyberjaya), North of Thailand and various parts of China from April to (at least) December 2017...

Have a passion for Chinese language and civilization anyway...

Of course, will attend mHealth congresses in China wearing Regina Holliday's jacket -- the one she painted for me... Chinese people usually love this jacket (from what I saw on a couple of opportunities in Beijing and Shanghai)...

8 followers on Weibo already, including Veritas Genetics (Shanghai), hopefully soon 12...

You, Your Data, Your Genome

Portable Genomics is a startup in San Diego, California.

Want to know what is at the forefront of digital medicine? Your genome on your mobile, since biology is going digital, is something that is bound to happen...

Read Portable Genomics' Press Release (hot off the press)!

Courtesy of Patrick Merel, Founder of Portable Genomics:

Download PDF here: link.

http://www.thejournalofprecisionmedicine.com/genomics-data-at-your-fingertips-portable-genomics-patent-approved


"The Doctor Will See You Now"



"The Patient Will See You Now" French Version

http://tinyurl.com/mawk4vf





Best Book Of The Month Nonfiction (Amazon): "The Patient Will See You Now". Looks like health care needs a massive reboot...


"It's not about looking something up on the internet. It's about your own data, real time."

Eric Topol MD, Cardiologist: "Patients can now have their own cardiogram on their iPhone."
Putting patients in charge of their own data, instead of Doctors?
Putting patients in charge of their data instead of Doctors? Sounds like a printing press revolution.
"It's not about looking something up on the internet. It's about your own data, real time."
Healthcare revolution will comme from outside of healthcare.
The Future of Medicine? Doctors will still be needed.


Eric Topol MD's 2.0 version is Hero 6's Baymax

"Medical Blockbuster of the Year" (Forbes):


This book already exists as a fiction, by the way... So the 2.0 version of Eric Topol MD would be... Baymax. Healthcare artist and activist Regina Holliday will love this! Baymax Will See You Now.


"On a scale from 1 to 10..."
"My hands are equipped with defibrillators...Clear."
Actually, Baymax could be quite helpful in "genomic" precision medicine... Who will build him? The IBM of health care or some MIT students, in some kind of open-source mode? Intellectual Property and Digital Rights Management are building tomorrow's empires... San Franciskyoto Side Story...

The Envelope Pushers



We've all heard about these books. How the future of medicine is in the patients' hands. Great. But this medicine of the future seems to suffer from a transition or procrastination problem.

Yesterday Sir John Burn MD, Professor of Clinical Genetics, Newcastle University (UK), wrote to me:

"There are still many people throughout healthcare who consider genomics as ‘nothing to do with them’. This is an attitude we need to change as the technology's ability to change people’s lives develops. There will come a time when genomics is no longer niche, but will be absorbed into medicine. It will apply to every aspect of pathology and be an integral part of care. Therefore, it is vital for everyone to know and understand its terminology and implications."

 How do we get there? Patients worldwide are starting to realize they can be in charge of their own health, especially in cases where no diagnostic could be achieved, no treatment could be offered.

Australian physician Leah Kaminsky (Melbourne) calls them the envelope pushers. For ex., Angelina Jolie in medical bestseller "The Patient Will See You Now" by Eric Topol MD (San Diego, CA, USA), but equally interesting:







1) Mission Massimo in Australia
Leah told me she is working on the sequel to this book: "Fixing the Code". I absolutely loved "Cracking the Code", this is my favorite book for 2015.
2) Mission Matéo in France
Two major differences here: Massimo's story was written by a Doctor, Leah Kaminsky. As she saw Massimo's disease (her patient, she is a pediatrician) was beyond the realm of her competence, she decided to write about the father's story. Massimo's father is actually at the center of the book: he is the envelope pusher, the pioneer. He got a diagnostic for his son where nobody else could. Leah tells about the diagnostic odyssey and reflects on some of the ways that conventional medicine and genomic medicine could find common ground.

I will meet with Leah, Massimo and his parents in Melbourne in a few days. How can we build synergies to take advantage of what pioneer patients have achieved and democratize genomic medicine? Surgeons and doctors should attend congresses about genomics; not only geneticists. And geneticists should attend medical congresses to show what can be done. Robert Darnell PhD at the NY Genome center showed his work about genomic precision medicine at the Academy of Medicine in NY.  See the Genomics and Health Care Conference, two months ago (link to videos). Doctors at the Academy of Medicine had a lot of questions for Darnell, they showed real interest.

The French case is different. Matéo did get a diagnostic, acute leukemia, but there was nothing doctors could do that was helpful. If he does not get a new treatment (CAR-T cells) he will die in a couple of months. French biotech Cellectis was not helpful. It turns out they do have a trial for the new treatment but due to regulation matters, things are being slowed down to such an extent that by the time the new drug trial starts, Matéo will be dead. So the parents looked for solutions, found this innovative treatment in the US and started a crowdfunding action (treatments are 10 times more expensive in the US than in France) to speed things up and save their son's life as no doctors seem to be in charge. The contrast between the media uproar (Matéo is now a star on French TV) and the extreme apathy of French medical establishment is mind boggling. 

While doctors are burying their heads in the sand
Matéo is taking the Future of Medicine in his hands.


Finishing my exams at MIT (genomics). Can't wait to meet with Leah, Massimo and his parents...

"Outdated Science Is My Worst Ennemy."

http://www.yourbest100.com/people/top-100-influential-people
Catherine Coste, author of this blog. Pic: Hello Tomorrow, Paris, June 2015
I used to work with surgeons and doctors as a marketing assistant. I earned myself four MITx EdX certificates (MOOCs) to learn about genomics and quantitative medicine. If a marketing assistant can do it, physicians can do it!

The patients will want it...

Overclocking Medicine

https://www.reddit.com/r/futurama/comments/3pea6t/bender_reads_some_awesome_books_when_he_is
 
http://mashable.com/2013/02/08/watson-six/#oXHyvSCRSGqm
"This is Futurama. Books are only for overclocked robots."

Breaking the Paternalism In Health Care...



Breaking the Paternalism Of Health Care... Will Take A Whole Confederacy of Dunces (= Patients). Great book, by the way...