Leslie Saxon MD: "We live in a data mining society"

.@DrLeslieSaxon: "FB should have our med data!" http://t.co/wATp9uhkCt Gr8 pres! #mhealth #CDoM #bigdata "We live in a data mining society"
— CATHERINE COSTE (@cathcoste) May 26, 2014

"Crowd-Sourcing science. We can all participate: Be data donors"

Crowd-Sourcing science. We can all participate: Be data donors. @stephen_friend at #TED2014 RT @daniel_kraft @Sagebio pic.twitter.com/yTnnTGKyBo
— Aaron Sklar (@aaronsklar) March 19, 2014

" Genentech signs five-year collaboration with Patients Like Me for patient data"

We are excited to enter patient-centric research collaboration with @PatientsLikeMe http://t.co/FICWMRF4E0
— Genentech (@genentech) April 7, 2014

Wonder how pats will feel? RT @matthewherper: Genentech signs five-year collaboration with @patientslikeme for patient data. Interesting.
— Sally Church (@MaverickNY) April 7, 2014

How Social Media and Big Data are Changing the Landscape of Surveillance and Research

How Social Media and Big Data are Changing the Landscape of Surveillance and Research http://t.co/5mrMDJsNbo
— CATHERINE COSTE (@cathcoste) February 14, 2014

Give the Data to the People!

RT @Paul_Sonnier: "Give the Data to the People" | @hmkyale @Yale http://t.co/Vcj6FKZu0a #DigitalHealth #HealthData #OpenData
— 23andMe (@23andMe) February 9, 2014

Great essay on sharing genetic data - Better health and medical breakthroughs

Great essay on sharing genetic data - Better health and medical breakthroughs @FootnoteMedia http://t.co/kXyH5LthdT pic.twitter.com/WtOF5dMmJy
— FUTURISTECH INFO (@FuturistechInfo) February 5, 2014

J&J Opens Data Vault to Yale, in ‘Unprecedented’ Transparency Move

J&J Opens Data Vault to Yale, in ‘Unprecedented’ Transparency Move | Xconomy http://t.co/iX3Vj1EtLI
— Carlos Rodarte (@crodarte) January 30, 2014

"Give the Data to the People" by @hmkyale http://t.co/muBatqaPio Couldn't agree more; congrats @Yale for making this happen #openaccess
— Eric Topol (@EricTopol) February 3, 2014

How Genetic Data Sharing Will Revolutionize Healthcare

How Genetic Data Sharing Will Revolutionize Healthcare http://t.co/1A8S55MkHl
— Jean Michel Billaut (@Billaut) February 1, 2014

"Would u publish your latest research findings as a Tweet? You can now."

Would u publish your latest research findings as a Tweet? You can now https://t.co/8Jjle4Hbp4 #loveHE #HigherEd
— Professor Andy Miah (@andymiah) January 24, 2014

@TwournalOf

RT @cathcoste: " .@TwournalOf "Eric Topol MD's gonna love it!" Scientists too. #opendata cc: @jackandraka @KiiLNYC Twitter pub for research
— Charlene Ngamwajasat (@doctorcharlene) January 29, 2014

"Realities of data sharing using the genome wars"

"The purpose of this article is to examine one process of data sharing in detail in the hope that the problems and successes can inform the system more generally." 

Realities of data sharing using the genome wars: as case study - an historical perspective and commentary

 ==> Download case study as PDF (15 pages) here.

JFlatley from @illumina, convincing data generators to share data is a big problem #freethedata #PMWC14
— Nikhil Chopra (@chopranik) January 27, 2014

J. Craig Venter: "Cool article on data sharing, Celera and the Genome Wars by veteran"

Cool article on data sharing, Celera and the Genome Wars by veteran @Sciencemagazine editor Barbara Jasny http://t.co/5vA334crIe #OpenAccess
— Kevin Davies (@KevinADavies) January 27, 2014

94% of patients willing to share health information on social media

94% of patients willing to share health information on social media http://t.co/fmYTUUnubC via @MobiHealthNews
— Portable Genomics (@portablegenomic) January 25, 2014

The future of evidence based medicine

This is crucial to understand: AI + population health records + physician notes + trial data = future of evidence based medicine #dld14
— MedCrunch (@medcrunch) January 20, 2014

MIT to offer its first professional MOOC in big data

MIT to offer its first professional MOOC in big data http://t.co/lXwrkYjTue via @gigaom
— CATHERINE COSTE (@cathcoste) January 11, 2014

Become a Data Donor!

At #DHCES, @daniel_kraft used a term I hadn't heard: data donor. Turns out there's a Web site about this concept: http://t.co/qO9CMhZeoT
— Scott Mace (@scottmace) January 9, 2014

"If we don't share data, it will hurt healthcare."

@StanfordCEHG

The DNA Microcredit Revolution: Donate your Data in India thanks to microcredit

#genomics @Yunus_Centre @GrameenFdn @eric_lander The DNA Microcredit Revn: Donate your Data in India thx2 microcredit http://t.co/PNz49nzzs4
— CATHERINE COSTE (@cathcoste) December 27, 2013

https://www.facebook.com/catherine.coste

The DNA Microcredit Revn:Donate your Data in India thx2 microcredit #CDoM #genomics http://t.co/PNz49nzzs4 @EricTopol pic.twitter.com/1ac9MVLNlw
— CATHERINE COSTE (@cathcoste) December 26, 2013

#genomics
#CDoM

^{Meet the Made-in-India Cancer Genome Project: Donate your DNA data, thanks to microcredit
Microfinance for DNA Data Sharing}
Using Microcredit (microfinance) for some made-in-India Human Cancer Genome Project?
Wanna get some better, affordable and personalized medicine?
MICROCREDIT YOUR DNA!

We can donate our vital organs upon our death... Now it seems that we can even donate... our data.

"Our project aims to enable citizens to donate their data upon their death." https://www.newschallenge.org/challenge/healthdata/entries/check-yes-to-release-your-data …

http://prayformedicine.blogspot.fr

But... why wait for somebody's death??

I dunno if you are familiar with India and Bangladesh -- well I am a tiny bit. You find people all over the place, willing to sell their hair (women, for the worldwide hair extension market), their blood, a kidney (er that one falls under the organ trafficking category), etc.

Now how about cancer and healthy (but not wealthy) patients who could trade their DNA data for some rice or medicine or... a microloan?

Remember the microcredit (microfinance)? Muhammad Yunus was awarded the Nobel Peace Prize in 2006 for his work providing microcredit services to the poor.

Would you rather give your data, or... a vital organ?

The speed of progress in the human genome science is mind blowing... However, curing cancer will request a lot of sharing work from patients worldwide... India is a good place to start... 

^{Big Pharma / Big Biotech are both powerful and greedy. Any power calls for a counter-power. With no counter-power at all, "big pharma" is very likely to turn into "pig pharma" -- consuming Chinese human guinea pigs, that is...}

"Medical student Pia Grazdani decides to take a year off from her studies and escape New York City. Intrigued by the promise of the burgeoning field of medical technology, Pia takes a job at Nano, LLC, a lavishly funded, security-conscious nanotechnology institute in the picturesque foothills of the Rocky Mountains in Colorado. Nano, LLC is ahead of the curve in the competitive world of molecular manufacturing, including the construction of microbivores, tiny nano-robots with the ability to gobble up viruses and bacteria. But the corporate campus is a place of secrets. When Pia encounters a fellow employee on a corporate jogging path suffering the effects of a seizure, she soon realizes she may have literally stumbled upon one of Nano, LLC's human guinea pigs. Is the tech giant on the cusp of one of the biggest medical discoveries of the twenty-first century – a treatment option for millions – or have they already sold out to the highest bidder?" (Amazon)

http://www.truthdig.com/cartoon/item/made_in_bangladesh_20130509

^{http://tablenumbersix.wordpress.com/2013/06/17/dna-sequencing-an-opportunity-for-breakthroughs-in-science/}

DIY clinical trials coming soon

Beyond citizen science, here is @bengoldacre's new RandomiseMe website http://t.co/1JgJk2kbXE DIY clinical trials coming soon !
— Eric Topol (@EricTopol) December 17, 2013

Eric Lander PhD, Geneticist: "Please share your data! The Cancer Genome Project."

MITx 7.00 MOOC "Intro to Biology - The Secret of Life". Lecture week 13.Instructor: Eric Lander PhD.

Eric Lander, PhD, involved in the Human Genome Project, MIT Professor:

"What has been so cool, in the past four or five years, as we talked about DNA sequencing, it's gotten so cheap that you could sequence every patient's own cancer and compare it to their normal DNA. And find that patient's mutations. And you can imagine a world where every patient will have their genome sequenced and their tumor sequenced. And a physician could use that information, as we collect more of it, to figure out which drugs to be using in which combinations. And that's a world we're all imagining right now, a world where that could happen. It's going to take a lot of work to get there. And in my opinion, it's going to take a lot of sharing.

Because we're going to need information pooled from patients around the world. Because we're going to have to learn which patients respond well to which drugs as a function of which mutations they have. And if they have a relapse and the cancer becomes resistant to the drug, which mutations have happened? We're going to need to pool all that, which means I think we're going to need to have some kind of common, agreed upon data sharing mechanisms where patients can voluntarily-- it's up to them-- but voluntarily say, 'count me in. I'm willing to share my data with other people sharing their data so we can build a big enough data set that we can learn what works best.' And I wouldn't be surprised over the next couple of years we see a kind of alliance across many institutions in the world and patients in many countries to try to create that knowledge base. It's kind of like a human cancer Genome Project, but where it's the humans who are involved who are doing it, or the patients who are doing it. And I think it's going to be a really important thing."

MITx 7.00 MOOC "Intro to Biology - The Secret of Life". Lecture week 13.

Cutting-Edge Medical Researchers Say Their Projects Break Big Data Ceiling

Medicine isn't a science yet, Vinod Khosla says -- but data will make it so http://t.co/bvdBY78JNx

— Jean Michel Billaut (@Billaut) November 25, 2013

Analysis of huge data sets will reshape health care http://t.co/CrVNmrWOhP

— Jean Michel Billaut (@Billaut) November 25, 2013

Cutting-Edge Medical Researchers Say Their Projects Break Big Data Ceiling http://bit.ly/15G2TGL
— Data Informed (@Data_Informed) November 22, 2013